The mucocele is gone!

[kimballot]

Hello Friends -

 

This is an update on my son's sinus mucocele issue - (see http://www.latitudes.org/forums/index.php?...mp;hl=kimballot for details)

 

Surgery went well - no surprises. Doctor says this is "the most gratifying surgery he has done all month" - because it so needed to be done. All the gook has been removed and sent off for testing. YAY!!

 

The doc did not have to go into the eye orbit itself, but was able to drain the part that had moved into the orbit from the sinus. He ended up bringing in the computer - guided equipment, which is not usually used at this Children's hospital - so I have some cool endoscopic pictures to add to my son's file (and most kids just get baby pictures and sports team pics!).

 

Doc looked around all other sinuses while he was in there and says he can state that sinuses are currently infection-free!

 

My son says it feels funny to be able to breathe through his nose.

 

If recuperation is this smooth we will be in good shape! We'll see!!

 

Next hurdle: tackling out of area insurance coverage for Dr. B so we can continue allergy and immunology treatments.

 

Thanks for all your support!

[LNN]

Hooray for your whole family!!!!!! I hope you are pleasantly shocked as you start to adjust to a new "normal" that's filled with nothing but good health and more happiness than you can stand!

[Fixit]

i'm glad that it went smooth....and hopefully no more worries in that area....

can i ask...what is you are doing/going to do for allergy and immunology....particularly the allergy part...

thanks for posting the good news

[tpotter]

YAY!

[kimballot]

i'm glad that it went smooth....and hopefully no more worries in that area....

can i ask...what is you are doing/going to do for allergy and immunology....particularly the allergy part...

thanks for posting the good news

 

My son saw an allergist regularly from about 2000-2004, and had traditional high-dose allergy shots from 2002-2004. The allergy shots did not seem to help with clearing sinus infections - still had sinusitis whenever he was off high dose abx. He had reconstructive sinus surgery in 2002 - still no improvement.

 

In 2004 we switched to the Doris Rapp low dose allergy approach, which is not covered by insurance. We also stopped abx at that time to see if the low dose shots were helping the sinuses. Once we stopped abx all together, a horrible tonsil infection erupted and we decided he had been harboring strep in tonsils, so we had tonsils removed and sinuses irrigated in surgery.

 

Son did very well after that, but we maintained Rapp clinic low dose shots at home (they are similar to the sublingual allergy drops); we also did a rotation diet for 2 years to try to counter any food allergies, and we did lots of supplements. Son did great until we weaned off the diet in 2008 - plus he probably had myco p at that time, but we did not know it. Had OCD exacerbation that lasted several months.

 

We have stayed on the low dose allergy shots until seeing Dr. B a couple of months ago. Dr. B asked us to go back and try high dose allergy shots - after his infection was cleared. He says high dose did not work in our case (years ago) because the infection was not cleared FIRST - therefore, shots were not given a chance to work (infection being both sinus and tonsils).

 

Dr. B thinks that high dose allergy shots will help his immune system more than low dose (at least in my son's case). Given how RIGHT Dr. B has been about everything else we agreed to give it a try... so now I am waiting / hoping for insurance coverage as we want Dr.B to do the allergy testing if possible.

[colleenrn]

What a relief! That is great!!

Colleen

[wornoutmom]

So glad to hear things are looking up!!!!!!!!!!!!!!!!

[lynn]

I'm so happy to hear this! Good luck!