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I've been over in the pandas section fro quite some time, we've known about DS's pandas since he was 3. He's almost 6 now and was diagnosed with Asperger's this March. We've finally wrapped our heads around it and are starting him on a GFDF diet to see if some of his symptoms lessen.
We haven't talked to him about his Asperger's, just seems way to early/young.
He's been asking why he has to be gfcf so I've told him things like to help his eczema and see if it helps him feel better.
I hate making him be on a special diet. He's ok with it when it's just us, but he gets upset when he has to have special foods in a group.
Not sure what I'm saying here besides hello, here we are and any btdt advice would be great. DS is starting Kindergarten ina few weeks..shuld be interesting.
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New to this section adding Asperger's to pands dx
#2
peglem 
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Posted 25 July 2010 - 11:57 AM
The most successful program I've found for helping with social/emotional development in autism and aspergers is Relationship Development Intervention. You can read more here:
http://www.rdiconnect.com/
This is the only program I know of that works on remediating developmental deficits, instead of just getting the child to "act normal."
http://www.rdiconnect.com/
This is the only program I know of that works on remediating developmental deficits, instead of just getting the child to "act normal."
-Peggy, mom to 15yo PANDAS daughter w/ onset probably in infancy. Manifests w/ severe autism symptoms and currently nonverbal.
#3
michele
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Posted 04 August 2010 - 03:59 PM
Hi Tracy. I have talked to you before. My son is 8 and stared having PANDAS symptoms at one year. A year ago he has been diagnosed with Aspergers and ADHD and OCD. He has had lots of motor delays. He is quite the mix. We did the GF CF diet for 6 months but saw no change. It was hard to do with school too. He was also 6 then. At 8 he is seeing how he is different and understanding PANDAS and Aspergers. I feel time helps them mature, and beween six and 8 are hard years. I had to train myself to deal with him in a calmer way. He still is obstinate and can be difficult but with the help of some meds and psychologists he is less impulsive and angry then last year at this time.
Michele
Michele
peglem, on 25 July 2010 - 12:57 PM, said:
The most successful program I've found for helping with social/emotional development in autism and aspergers is Relationship Development Intervention. You can read more here:
http://www.rdiconnect.com/
This is the only program I know of that works on remediating developmental deficits, instead of just getting the child to "act normal."
http://www.rdiconnect.com/
This is the only program I know of that works on remediating developmental deficits, instead of just getting the child to "act normal."
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