Hi
Can anyone here tell me if they are using seroquel and what dosage. My son was put on it July 28 at 12.5 mg. And was raised to 25mg 2 weeks ago. Over the past week his tics have gotten so bad he is getting upset and thinking the seroquel isn't helping. We spent the month of June and July tappering down from 3 year on Orap. His doctor wanted to start out slow with the seroquel and work up to a acceptable dosage. We take this 25mg at bedtime and upon rising his tics are not bad but as the day goes on they start and are so unreal by bedtime he is wore out. Right not he has sever head nodding and all kinds of vocal ticing. He is have finger ticing and breathing tics also. I have read that this small of dosage won't help. Is this true or not. We haven't seen any side-effects at this dosage.
Anyone with any info please respond. I have read all over the net on the web site that have seroquel.
Thanks
Karen Joyce
Full Version: seroquel
bumping this one up for maybe a responce.
We go back to the doc on Friday and he will probably increase the seroquel once again. Like I said before the ticing is really bad.
Take Care
Karen Joyce
We go back to the doc on Friday and he will probably increase the seroquel once again. Like I said before the ticing is really bad.
Take Care
Karen Joyce
Hi Karen
I have seen your post here and on BrainTalk and so hoped you would get the answers you are seeking.
I have no experience with seroquel, except to know it is used for schizophrenia?? so i am quite puzzled at it's use for TS....but as i said I really am ignorant about it.
I can only go by our experience to say that if you believe a med is negatively affecting your child.......it probably is. Mothers are so fine tuned to their kids that we notice things so much more acutely.
For my own child, i saw meds only make life worse for him
For many i know they have made life better.
It is a very fine line isnt it........but........if soemthing is not helping, and things seem to be going downhill.....perhaps, rather than just increasing the dose, it may be time to try another approach!!
There is an excellent book by Dr Peter Breggin MD called "Your Drug May Be Your Problem" that may provide the answers you seek
The Breggin website is http://www.breggin.com and the book info is on the site at
http://www.breggin.com/yourdrug.html
I got the book thru Boarders Books
HTH
I have seen your post here and on BrainTalk and so hoped you would get the answers you are seeking.
I have no experience with seroquel, except to know it is used for schizophrenia?? so i am quite puzzled at it's use for TS....but as i said I really am ignorant about it.
I can only go by our experience to say that if you believe a med is negatively affecting your child.......it probably is. Mothers are so fine tuned to their kids that we notice things so much more acutely.
For my own child, i saw meds only make life worse for him
For many i know they have made life better.
It is a very fine line isnt it........but........if soemthing is not helping, and things seem to be going downhill.....perhaps, rather than just increasing the dose, it may be time to try another approach!!
There is an excellent book by Dr Peter Breggin MD called "Your Drug May Be Your Problem" that may provide the answers you seek
The Breggin website is http://www.breggin.com and the book info is on the site at
http://www.breggin.com/yourdrug.html
I got the book thru Boarders Books
HTH
my son was on seroquel for allmost a year its basically not a med for tourette syndrome it is a anti psychotic medication used on people or children with psychiatric disorders. if you are going to medicate they need to add clonodine or something of that nature to help with the tics.clonodine along with seroquel will stop the tics in thier tracks but im warning you. my son developed terrible hives from the medication and had to be taken off. he had to have shots on a daily basis to get rid of the full body hives that covered his entire body. he looked like he had the measles he couldnt breathe and it was scarry. my advice to you is not to medicate look to other sources to help with his tics..let him or her be themselves..apriella
Hi
Sorry for the long wait in responded. We too have found out the seroquel isn't for tourettes. We kept going and raising the dosage until we were at 75mg. we took 25mgs X 3. Upon going to this dosage we were almost ER bound on the first day of this. By my son's 3rd dosage he was almost lifeless, zombied out and not very alert. He complained of dizzness, upset stomach and his arm and legs wouldn't move right. He couldn't walk without holding on to walls. We took his blood pressure and it was only 70/45 his pulse was 45. SCARY!!!!!!! When we called the ER they said he had a sudden drop in pressure to keep him up and moving and not let him go back to sleep. Well finally in a few hours the dizzness went away and he got a little more back to normal. But it was way into the early morning before his blood pressure would stablize to a safe reading for me to even let him lay down to rest. Well since then we are almost tappered off the seroquel we are now at only 1/4 of a pill we started at 25mgs for 1 week then went to 12.5mg for 1 week and now at what would be about 5.5mg for 1 week and as of today we are down to powder........ My son who will be 11 in November has decided to go meds free and tic and tic anc tic....... He don't want to feel that way agin he said. He is very heard strong and willing to handle the ticing.
God Bless
Karen Joyce
Sorry for the long wait in responded. We too have found out the seroquel isn't for tourettes. We kept going and raising the dosage until we were at 75mg. we took 25mgs X 3. Upon going to this dosage we were almost ER bound on the first day of this. By my son's 3rd dosage he was almost lifeless, zombied out and not very alert. He complained of dizzness, upset stomach and his arm and legs wouldn't move right. He couldn't walk without holding on to walls. We took his blood pressure and it was only 70/45 his pulse was 45. SCARY!!!!!!! When we called the ER they said he had a sudden drop in pressure to keep him up and moving and not let him go back to sleep. Well finally in a few hours the dizzness went away and he got a little more back to normal. But it was way into the early morning before his blood pressure would stablize to a safe reading for me to even let him lay down to rest. Well since then we are almost tappered off the seroquel we are now at only 1/4 of a pill we started at 25mgs for 1 week then went to 12.5mg for 1 week and now at what would be about 5.5mg for 1 week and as of today we are down to powder........ My son who will be 11 in November has decided to go meds free and tic and tic anc tic....... He don't want to feel that way agin he said. He is very heard strong and willing to handle the ticing.
God Bless
Karen Joyce
My son is taking serequol now forl Tourettes and its working for him. It is a antipaychotic med. but the antipsychotic meds are often used for Tourettes. My son has a very severe case of TS. If your son does not have a severe case of TS then you might could try something like clonidine or Tenax. But anyhow serequol is used for TS. It does not say it is used when you read about it but doct;s often use it 
Hello
Yes my son's ts tends to be quite bad from time to time. We have tried the tenex,clonidine,orap, and seroquel. THe only one we had success with was the orap and we used it for a little over 2 years. But with weigh gain was getting out of control. The clonidine and tenex caused to much sedation. And as you read the seroquel was extreme low blood pressure. So he is so scared and tired of the side-effect he don't want anything. Right now his ticing is really bad...... I really hope it will slow down again. He will take spells for many weeks and he is barely noticeable then boom!!!!!!!!! TIC TIC TIC from eyes, to stomach, to head, to neck, to face to nose etc........ Right now he is have really bad eye ticing with the rolling and blinking, vocal ticing with a cough and a clear and the nose tic like something is in there but won't come out..... He said he will manage it without meds from now on out. I only hope he can. He is doing so much better without anything. His moods was getting so bad we couldn't stand much more. He is no longer angery nor moody like before. He is happy and joking and laughing like the little boy I remember before all the meds. Don't get me wrong they helped the ticing but the side-effects we kept seeing wasn't worth it for us. I now see my son I lost about 3 years ago when we started the looking for the right medicine to help the ticing. If he decides to try meds again someday I won't say no but it won't be me pushing him.
God Bless
Karen Joyce
Yes my son's ts tends to be quite bad from time to time. We have tried the tenex,clonidine,orap, and seroquel. THe only one we had success with was the orap and we used it for a little over 2 years. But with weigh gain was getting out of control. The clonidine and tenex caused to much sedation. And as you read the seroquel was extreme low blood pressure. So he is so scared and tired of the side-effect he don't want anything. Right now his ticing is really bad...... I really hope it will slow down again. He will take spells for many weeks and he is barely noticeable then boom!!!!!!!!! TIC TIC TIC from eyes, to stomach, to head, to neck, to face to nose etc........ Right now he is have really bad eye ticing with the rolling and blinking, vocal ticing with a cough and a clear and the nose tic like something is in there but won't come out..... He said he will manage it without meds from now on out. I only hope he can. He is doing so much better without anything. His moods was getting so bad we couldn't stand much more. He is no longer angery nor moody like before. He is happy and joking and laughing like the little boy I remember before all the meds. Don't get me wrong they helped the ticing but the side-effects we kept seeing wasn't worth it for us. I now see my son I lost about 3 years ago when we started the looking for the right medicine to help the ticing. If he decides to try meds again someday I won't say no but it won't be me pushing him.
God Bless
Karen Joyce
Dear Karen, I'm just dropping a note to see if your doctor had ruled out PANDAS?
Best wishes, Sheila
Best wishes, Sheila
Hi Sheila
At one time I thought Gavin my be pandas due to his ticing relating to illness but he still tics sometimes when he is not sick. But unless he is really bad sick his tics are usually very little. During bad allergy eposides his ticing will go full force or it he is sick with something his tics are really bad. His doctor said they didn't think he was pandas even though his first ticing that really got scary was when he had strep at the age of 5. This was when we first knew he indeed had TS. Or should I say I knew. He is having a bad time with allergys right now so his tics are kinda bad. Not like they were before we started allergy shots twice weekly. He is doing much better......
Thanks
Karen Joyce
At one time I thought Gavin my be pandas due to his ticing relating to illness but he still tics sometimes when he is not sick. But unless he is really bad sick his tics are usually very little. During bad allergy eposides his ticing will go full force or it he is sick with something his tics are really bad. His doctor said they didn't think he was pandas even though his first ticing that really got scary was when he had strep at the age of 5. This was when we first knew he indeed had TS. Or should I say I knew. He is having a bad time with allergys right now so his tics are kinda bad. Not like they were before we started allergy shots twice weekly. He is doing much better......
Thanks
Karen Joyce
Karen--I'm glad Gavin is doing better! Did you just recently start the allergy shots? What type of shots are they, if you don't mind my asking. Sheila
Sheila
Gavin started his shots last June. He is allergic to 25 different things from mold to trees to dust to grass to dog to cats etc...... He isn't allergic to any foods thank goodness. He takes 2 different shots they are what he was tested allergic to when we allergy tested. He also uses nasalcrom and allerga. Even with the shots he still has allergies but not as bad. He isn't sick near as much as he use to be. It took about 5 months for him to get use to the shots. He stayed congested for about 4 1/2 months once we started them. With each seasonal change he has bad eposides with allergies and ticing. He does ticing other times but a lot of things will cause them to be more sever. Such as illness, angry, being tired, change in weather, air freshners will tear him up, he will start with a sniffing tic non stop when we are around any air fresheners that is strong. But as I said he told me and the doctor no more meds for me!!!!!!!!!!! We went on Friday for a vist with his doctor and he talke to us a long time and when we left he patted Gavin on the pack and told him to hang tight he was one strong boy and he loved and admired him VERY MUCH. The made my son so happy and so more determined not to let his ticing get the best of him.
Take Care
Karen Joyce
Gavin started his shots last June. He is allergic to 25 different things from mold to trees to dust to grass to dog to cats etc...... He isn't allergic to any foods thank goodness. He takes 2 different shots they are what he was tested allergic to when we allergy tested. He also uses nasalcrom and allerga. Even with the shots he still has allergies but not as bad. He isn't sick near as much as he use to be. It took about 5 months for him to get use to the shots. He stayed congested for about 4 1/2 months once we started them. With each seasonal change he has bad eposides with allergies and ticing. He does ticing other times but a lot of things will cause them to be more sever. Such as illness, angry, being tired, change in weather, air freshners will tear him up, he will start with a sniffing tic non stop when we are around any air fresheners that is strong. But as I said he told me and the doctor no more meds for me!!!!!!!!!!! We went on Friday for a vist with his doctor and he talke to us a long time and when we left he patted Gavin on the pack and told him to hang tight he was one strong boy and he loved and admired him VERY MUCH. The made my son so happy and so more determined not to let his ticing get the best of him.
Take Care
Karen Joyce
[FONT=Arial]Hello. I weigh about 110 soaking wet and am about 5'6. I took 200 mgs. of seroquel every night as a sleep aid coming off a 6 month recovery from alcoholism. I have been alcohol free for about 7 months now. I have found out that I am 2 months pregnant and have to stop taking the seroquel. I cant sleep at night and I am tired all day. I am miserable. Is there any way that I can taper off this a little more gradually without having such severe withdrawl? I know that there has never been a human study from pregnant women on thisa medication, only in lab rats so I know that in high doses it can cause neural tube defects in their unborn. I, of course, dont wish to harm my baby. I am afriad that if I dont taper off, Im gonna go nuts from sleep deprevation. I cant sleepduring the day due to my other small children so Im at a loss. Any help would be much appriciated. Thanks
Wendy-NC
Wendy-NC
Dear Wendy
I dont know about the seroquel as i have no experience with it, but just wanted to say Hi and hope things get a whole lot better for you.
It is hard to cope when you arent sleeping properly.
Have you spoken to your doctor about this?
there are lots of natural sleep aids, some of which also help with alcohol withdrawal. but I am not sure about their use in pregnancy.
I know some people say that warm milk before bed is helpful.
Hopefully someone with more knowledge on this will be along soon
In the meantime I just wanted to encourage you as i can sense you are feeling kinda lousy.
I do hope and pray things will settle down and that all will be well for you and your new baby.
Stay in touch here and let us know how you are doing
I dont know about the seroquel as i have no experience with it, but just wanted to say Hi and hope things get a whole lot better for you.
It is hard to cope when you arent sleeping properly.
Have you spoken to your doctor about this?
there are lots of natural sleep aids, some of which also help with alcohol withdrawal. but I am not sure about their use in pregnancy.
I know some people say that warm milk before bed is helpful.
Hopefully someone with more knowledge on this will be along soon
In the meantime I just wanted to encourage you as i can sense you are feeling kinda lousy.
I do hope and pray things will settle down and that all will be well for you and your new baby.
Stay in touch here and let us know how you are doing
Hi,
My name is Debbie Normand and I have a 13 year old son with tourettes. We are experimenting with seroquel. We went to a conference about tourettes and were told by a specialist that it takes fairly high dosages to affect the tourettes. In more severe tourettes, like my son, the tics can be quite stubborn. My son's are.
We were at 200mg a day for quite a while but now we're working our way up to 600 mg a day due to a resurgence of the tics. We take the increases slow since increasing it too quick makes Sam very sedated. His body needs to get used to it before we go up again.
Hope this helps. Of course LISTEN only to your doctor. We're not doctors on this chat thing and every case of tourettes is just a little different from the other and every body is different than the other.
My name is Debbie Normand and I have a 13 year old son with tourettes. We are experimenting with seroquel. We went to a conference about tourettes and were told by a specialist that it takes fairly high dosages to affect the tourettes. In more severe tourettes, like my son, the tics can be quite stubborn. My son's are.
We were at 200mg a day for quite a while but now we're working our way up to 600 mg a day due to a resurgence of the tics. We take the increases slow since increasing it too quick makes Sam very sedated. His body needs to get used to it before we go up again.
Hope this helps. Of course LISTEN only to your doctor. We're not doctors on this chat thing and every case of tourettes is just a little different from the other and every body is different than the other.
This is the first time I've been to this site and I must say I'm very interested and highly impressed with all that you folks do for your children. My son is 23 now and has had TS since he was 7. We've been through the meds for 14 years. Currently he's on Haldol for tics and Zoloft for depression, but I think now it's ineffective. We have a doctor's apt. today and after reading all of this, I think weaning from the Haldol and Zoloft may be a better way. At this stage Bill doesn't care about anything, has no emotion about anything and basically feel worthless. He's tired and just flat doesn't care about anything. I'm excited to try a new avenue. The haldol produces side effects of increased facial tics and it's getting bad now. He's been on it for four years and I just want my son back the way he was. He's willing to try anything now just to enjoy life and actually be happy about something. So, thank you all for just being out there and communicating. I wish this was available 14 years ago, those were some tough years! Yes, it's tough and it's hard to watch your children go through so much and there nothing you can do but love them. Hang in there!
Linda
Linda
Hi Linda and welcome
Having been thru the Haldol zombie phase with my dear son for a year over 2 years ago, I can only say I sure know how you feel when you say you just want your son back!(Mine was on Luvox too, very similar to Zoloft)
The med. withdrawal should be done VERY gradually and it is a very good idea to start the supplements soon to build his system (just NOT the seratonin elevating ones like 5HTP or SJW till he is off the Zoloft completely) but starting him on a good multivit with high Vit B plus extra magnesium/zinc/calcium and fish/flax oil capsules will work wonders. (There is very helpful advice on withdrawing from psychiatric drugs in Dr Breggin's book "Your Drug may Be your Problem"
http://www.breggin.com/yourdrug.html
(it is also available thru Amazon, Boarders etc)
Withdrawing from the meds is not a pleasant experience....BUT once it is over and your son's true personality begins to re-emerge....OH WHAT JOY!
All the best to you and do stay in touch with us and let us know how things are going.
Having been thru the Haldol zombie phase with my dear son for a year over 2 years ago, I can only say I sure know how you feel when you say you just want your son back!(Mine was on Luvox too, very similar to Zoloft)
The med. withdrawal should be done VERY gradually and it is a very good idea to start the supplements soon to build his system (just NOT the seratonin elevating ones like 5HTP or SJW till he is off the Zoloft completely) but starting him on a good multivit with high Vit B plus extra magnesium/zinc/calcium and fish/flax oil capsules will work wonders. (There is very helpful advice on withdrawing from psychiatric drugs in Dr Breggin's book "Your Drug may Be your Problem"
http://www.breggin.com/yourdrug.html
(it is also available thru Amazon, Boarders etc)
Withdrawing from the meds is not a pleasant experience....BUT once it is over and your son's true personality begins to re-emerge....OH WHAT JOY!
All the best to you and do stay in touch with us and let us know how things are going.
Hi,I have been reading this site for a short time , it makes me feel better to hear that there are others in my position. My son was diagnosed 2 years ago with TS. We are trying tenex and was wondering if anyone else has used it. I do not like giving him medication but it seems to help. I tried Rescue Remedy which is homeopathic it seemed to work a little. I am just starting to finally understand this all and have tried many natural options before we have tried the tenex.(sorry to ramble,but I am so glad I found this site) Has anyone heard of or done NAET .
kpd
I am so relieved to have found this site. My 9 year old son has ADD and is Bi Polar. We are currently on seroquel, clondodine and lamactil. This has been a struggle since the age of 3. It has been one medicine change after another. At times I feel he would be better off without any medicines but then I worry about getting him through the day at school. School is a really big problem at this point, lack of attention and behavior problems have him a very labeled child and it seems as though they would rather not deal with him. We tried to home school, that was a disaster....Any suggestions???
Hi Jennifer and welcome
we are glad you found this site too as we can all attest as to how much we have learned here, and how great it is to have such caring people on the board!
I hope you have visited the other Forum too here for ADD
Also you can get a lot of info from the ADD and the BiPolar forums over at BrainTalk http://www.braintalk.org
stay in touch!
Cheri
we are glad you found this site too as we can all attest as to how much we have learned here, and how great it is to have such caring people on the board!
I hope you have visited the other Forum too here for ADD
Also you can get a lot of info from the ADD and the BiPolar forums over at BrainTalk http://www.braintalk.org
stay in touch!
Cheri
Hi Jennifer,
You have a lot to deal with there, with all the medications. In addition to reading the threads on this site and asking questions, I suggest that if you have insurance and can afford it, you look at the doctor list at the top of the site.
These doctors will help you look for underlying health issues or food/environmental triggers that may be aggravating your son's condition. I don't know much about bi-polar, but there are a spectrum of neurological issues such as ADD/ADHD, tics, ocd etc.. that have been helped considerably through these methods.
Are you saying your son was diagnosed with ADD/bipolar at age 3? Was he on repeated anti-biotics as a child (e.g. ear infections)?
Claire
You have a lot to deal with there, with all the medications. In addition to reading the threads on this site and asking questions, I suggest that if you have insurance and can afford it, you look at the doctor list at the top of the site.
These doctors will help you look for underlying health issues or food/environmental triggers that may be aggravating your son's condition. I don't know much about bi-polar, but there are a spectrum of neurological issues such as ADD/ADHD, tics, ocd etc.. that have been helped considerably through these methods.
Are you saying your son was diagnosed with ADD/bipolar at age 3? Was he on repeated anti-biotics as a child (e.g. ear infections)?
Claire
Jennifer,
Another site that may be of interest to you is Truehope.com. This is a non-profit organization that was established by a man who's wife suffered from depression and took her own life. A multi-vitamin has been formulated to contain ingredients specific to Bipolar/Depression. You can read extensive information about the product (Empower Plus) on the website. The staff on the phone are very helpful and will monitor your son's progress with phone support. I am aware of others who have been helped by this product. It has also been used to treat tics successfully in some cases.
I would still recommend seeing a doctor in your area who can properly assess your son's imbalance, however, if money is tight, it is worth looking into this product.
Heather
Another site that may be of interest to you is Truehope.com. This is a non-profit organization that was established by a man who's wife suffered from depression and took her own life. A multi-vitamin has been formulated to contain ingredients specific to Bipolar/Depression. You can read extensive information about the product (Empower Plus) on the website. The staff on the phone are very helpful and will monitor your son's progress with phone support. I am aware of others who have been helped by this product. It has also been used to treat tics successfully in some cases.
I would still recommend seeing a doctor in your area who can properly assess your son's imbalance, however, if money is tight, it is worth looking into this product.
Heather
Heather,
I saw your other post on TV. Finding that right balance of trigger control and emotional happiness is not easy is it?
I am going through it with my son on carbs vs protein (his balance should be shifted due to the yeast), and I am leaving him a lot of control there--e.g. he still basically eats carbs (potatoes, rice, granola). His protein is power bars, cheese and 2x weekly he has chicken. The good news is I finally found a soy milk he will have with this granola--at least a little protein there.
Claire
I saw your other post on TV. Finding that right balance of trigger control and emotional happiness is not easy is it?
I am going through it with my son on carbs vs protein (his balance should be shifted due to the yeast), and I am leaving him a lot of control there--e.g. he still basically eats carbs (potatoes, rice, granola). His protein is power bars, cheese and 2x weekly he has chicken. The good news is I finally found a soy milk he will have with this granola--at least a little protein there.
Claire
I feel it is worth the mention---
please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...
Marinol is worth taking a look at---
Thus far it is doing the job of 3 drugs otherwise-
it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...
I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--
indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...
let me know if I can help-
Eric
please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...
Marinol is worth taking a look at---
Thus far it is doing the job of 3 drugs otherwise-
it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...
I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--
indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...
let me know if I can help-
Eric
I feel it is worth the mention---
please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...
Marinol is worth taking a look at---
Thus far it is doing the job of 3 drugs otherwise-
it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...
I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--
indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...
let me know if I can help-
Eric
please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...
Marinol is worth taking a look at---
Thus far it is doing the job of 3 drugs otherwise-
it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...
I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--
indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...
let me know if I can help-
Eric
FOR LINDA(GUEST)--with 23 yr son---
I was having a confusing moment and think I posted this twice in incorrect threads--anyway-ignore the confusion-please...
I feel it is worth the mention---
please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...
Marinol is worth taking a look at---
Thus far it is doing the job of 3 drugs otherwise-
it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...
I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--
indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...
let me know if I can help-
Eric
Hello, I have read all of the things you have written on this board and also am very impressed. I have a slightly different case though that I am really concerned about. My fiance has started taking seroquel (which she took starting 3 years ago for a duration of 2 years but then changed to another medicine, not sure of the name but she had to change medicines again because it was eating away at her insides) about a week and a half ago. I know I should wait 2 weeks they say to see a different in her medicine and her attitude and feelings towards it... but it's really making her act strange and I don't know what to do and I can't convince her that she's changed. She now has a lack of interest in life and has no feelings or emotion (which really hurts me inside when she can't express how she feels towards me anymore). I'm so worried for her it's making me sick inside and I just want her to be better. I'm not sure where to turn or what to do. This was an overnight change. A shock to me. This is the same girl that until a week and a half ago couldn't stand going a day or even an hour without knowing she had a way to see me. Then overnight started telling me she doesn't want to see me (same time she started the new medicine) and she has no emotions if I hug her or kiss her. Her sex drive is completely gone. Is this normal side affects of seroquel? Will these things go away? What can I do? Should I suggest a new doctor or a new medicine? The doctor that prescribed this medicine IS a new doctor. This was her first visit to him. If anyone could help me at all I would be very appreciative. Thanks (in advance)
Dear Concerned fiance
how blessed your lady is to have you!
Most of us here are anti-prescription meds either by bitter experience or because we dont want to have the bitter experience that so very many people do have with these brain drugs.
My son was severely hurt by these drugs and, from what you are describing, the same is happening to your fiance.
One doesnt wait 2 weeks when a drug is having a bad effect!!! Believe me...it can lead to toxic shock, med induced psychosis and more. I am not being alarmist...this is a simple reality!
She needs to get to the doctor asap.
Dont abruptly stop the med tho...she needs to taper off it under doctor guidance.
My personal advice to you would be to find an alternative doctor from the list posted at the top of this board,
http://www.latitudes.org/forums/index.php?...p?showtopic=565
and see if she can possibly be helped naturally.
I and many others here can testify to the effectiveness of alternative treatments.
I am rushing out, but please feel free to ask more details or email me if you need more info
Cheri
how blessed your lady is to have you!
Most of us here are anti-prescription meds either by bitter experience or because we dont want to have the bitter experience that so very many people do have with these brain drugs.
My son was severely hurt by these drugs and, from what you are describing, the same is happening to your fiance.
One doesnt wait 2 weeks when a drug is having a bad effect!!! Believe me...it can lead to toxic shock, med induced psychosis and more. I am not being alarmist...this is a simple reality!
She needs to get to the doctor asap.
Dont abruptly stop the med tho...she needs to taper off it under doctor guidance.
My personal advice to you would be to find an alternative doctor from the list posted at the top of this board,
http://www.latitudes.org/forums/index.php?...p?showtopic=565
and see if she can possibly be helped naturally.
I and many others here can testify to the effectiveness of alternative treatments.
I am rushing out, but please feel free to ask more details or email me if you need more info
Cheri
Dear Concernedfiance,
I have a good girlfriend who went on Prozac (for depression) and it killed her sex drive and emotions--according to her husband anyway. She is off of it now. Different drug, but definitely side effects.
If your fiance had OCD tendencies prior to taking the drug, some of the obsession/compulsion of seeing you a ton may be mitigated. Certainly there is a healthy balance in there, but it sounds like she has been taken too far in the other direction.
As with Chemar, I hope you can get her to see an alternative doctor. They have been Godsends to almost all of us here. And people who put there faith in doctors might not take to message board input--but rather a 'real doctor' to guide them. I basically shied away from doctors for my son for this--until I found the list on the board. Chemar and others were lucky enough to find theirs on their own--but it was like finding a needle in a haystack for me.
Claire
I have a good girlfriend who went on Prozac (for depression) and it killed her sex drive and emotions--according to her husband anyway. She is off of it now. Different drug, but definitely side effects.
If your fiance had OCD tendencies prior to taking the drug, some of the obsession/compulsion of seeing you a ton may be mitigated. Certainly there is a healthy balance in there, but it sounds like she has been taken too far in the other direction.
As with Chemar, I hope you can get her to see an alternative doctor. They have been Godsends to almost all of us here. And people who put there faith in doctors might not take to message board input--but rather a 'real doctor' to guide them. I basically shied away from doctors for my son for this--until I found the list on the board. Chemar and others were lucky enough to find theirs on their own--but it was like finding a needle in a haystack for me.
Claire
Hi, Boy, lots to respond to here!! First, having had TS for most of my life, I"m now 49, and having been on haldol for 20 years, which has caused tardive dystonia-which has totally affected my life- no reading, tv, driving, had to got to 1/2 time working, can barely see, constant pain, etc, believe me, these drugs are scary, and what i have, i have for life, there is nothing i can do about it, so please be careful when your dr recommends a new or old drug. I toowas on seroquel for the TS it did nothing for me, i can't remember the side effects , as they put me thro many trials of all sort s of new drugs, none of which worked, and now i have this which is even worse! To the pregnant woman who can't sleep, have you tried melotonin? Ask your dr first of course, but we get it at the health food store, it is something that your body naturally produces, but makes less the older youget, it really helps with sleeping and has noafter effects. Pilots take it alot because of their night hours etc.. i wouldn't stay on the drugs while pregnant, but thats my own view of course, i went off the halidol both times i was pregnant,and for some strnge and wonderful reason my tics totally went away until about 2 weeks after i finished nursing andthen returned with a vengeance sohad to go back on it, but at least i was off it during my pregnancy. I could never have forgiven myself if ihad caused a problem,but you have to do what you feel isbest for you, because your health and state of well being is very important right now. So please take care of yourself, and congratulations for being alchohol free for so long!! I think the young boy who has decided to go med free and live with his tics is very brave, and i congratulate him. My dr wanted me to try orap and i said no, I've had enough, i too want to be drug free. It's tough, the stares i get, the snickers etc, and i'm older, i can't imagine being so young and taking that on, good for him!!! We are what we are, and God gave us this for a reason, why i may never know, but i'm learning to live with it, and these forums are a real life line to so many people. Take care all of you.. teach1
So you're saying that this drug (seroquel) may be doing her damage instead? She was on this medicine for 2 years before. She said this is how she was then too. She just started using this doctor and went to him because of his reputation. Maybe it wasn't the right choice. I am looking through the list now to see if there are better choices for her. Normally she would let me go with her to the doctors but she's been acting so strange lately I'm not sure she'll accept my concerns about her as well as she normally would have. So, in other words, I'm not sure she'll like me going with her. She does have some small bits of OCD she says but it's nothing major. The only thing I notice is her bed. It has to be made a certain way or she can't stand it. Other than that, I don't notice anything about her. She's actually somewhat on the sloppy side at times (no offense to her in case she ever reads this!) I will read over these alternative doctors you have posted for me and see if me and either her or her family can't figure out a better solution for her. I plan on talking with her family tomorrow while she's at work, this way she doesn't know about it. I feel sneaky about doing it but I know she isn't thinking normally right now. If only she knew how much I wanted to help her. She tells me that she feels fine but I know she doesn't. She tells me this while her head is hanging low to the floor. She's actually been asleep all day today. She sleeps 15 hours and told me today that she needed her day off to rest and not be with me. She's never wasted 1 second she thought she could be with me. But she's been in bed all day today. It's 7 PM. That in itself scares me, let alone the fact that her personality has been shifted completely.
concerned fiance
I just did a quick search on Google for "seroquel side effects" and I was very alarmed at what I found...especially as many of the top results dealt with lawsuits against the manufacturer of the drug...and there are warnings that is has especially bad side effects IN WOMEN!!!!
Apparantly any doctor prescribing it is obliged to warn the patient of the serious risk of side effects, especially that of tardive dyskinesia, which is a majorly serious and non-reversible side effect!
You are very right to be proactive on this, and, tho your fiance may not understand it now, one day she will thank you!
I am not trying to suggest that she shouldnt be on medication, I am not a doctor and I do know that some people need meds....BUT
it is very clear from your posts, and from what I have just read, that she is having a bad reaction to seroquel!
Please stay in touch and let us know how things are going
I just did a quick search on Google for "seroquel side effects" and I was very alarmed at what I found...especially as many of the top results dealt with lawsuits against the manufacturer of the drug...and there are warnings that is has especially bad side effects IN WOMEN!!!!
Apparantly any doctor prescribing it is obliged to warn the patient of the serious risk of side effects, especially that of tardive dyskinesia, which is a majorly serious and non-reversible side effect!
You are very right to be proactive on this, and, tho your fiance may not understand it now, one day she will thank you!
I am not trying to suggest that she shouldnt be on medication, I am not a doctor and I do know that some people need meds....BUT
it is very clear from your posts, and from what I have just read, that she is having a bad reaction to seroquel!
Please stay in touch and let us know how things are going
I did the same thing! There are so many horrible side affects. I have created a document I'd like to show her and her family about how people have reacted to Seroquel. Most of the responses are from women who have experienced horrible side affects. This is stressing me out so bad. Would it be correct to assume that her lack of interest in me all of the sudden shouldn't be taken personal and I should blame it on the medications she is taking? It was an overnight change. It is really scaring me. My mother told me that I should be careful because every medicine is going to be on the internet with horror stories behind them. I know this is true, but I've looked up many medicines before and never seen any with such horrible side affects as this. And the worst part is that I haven't only read them, but I've been watching her HAVE them. The more I look into it the more I can pinpoint exactly what she is telling me she feels. I'm not doctor and I know I can't prescribe her medicines, but I don't think she was warned about any of these side affects or even knows how this may affect her. I'm worried enough today I haven't been able to contact her, I think she's been in bed all day still. Something will have to change tomorrow, it's getting too late now but I am going to do something to fix this tomorrow. I can't stand the agony that this is putting her through. I was doing some reading and I came to find that Seroquel is for people who are possibly a little too hyper and need to tone it down (Seroquel brings you down from being hyper) whereas Wellbutrin is the opposite and takes someone who is depressed and brings them UP to a normal state. My brother takes Wellbrutin and he is doing very well and I know no 2 people are the same, but my fiance is VERY depressed without her medicines... suicidal many times. After reading the difference between Wellbutrin and Seroquel, wouldn't Wellbutrin sound like a better choice for her? I feel bad for pestering everyone so much with this, but this has me so worried that I haven't eaten in 4 days and I slept only 2 nights of those 4 days. I can only think of how bad she must be feeling and wonder what I can do to help. I guess it's a safe assumption that I love her more than anything and am willing to do anything for her. So, what is everyones opinions on Wellbutrin? Or are there any other medicines that may work better for a suicidal and bipolar person?
what is her actual diagnosis?
BiPolar disorder??
BiPolar disorder??
I'm not sure but she is Bipolar and she is apparently pyschotic. She was in a pyschiatric ward for about a year. I suppose this was the reason they are trying Seroquel on her? It's a pysch drug. Would it help to describe it? She tries to cut herself from time to time and she feels worthless, never really angry, she doesn't get rage she gets so emotionally upset and worthless feeling that she feels she should just die.
wow! tough to deal with all that.
my heart goes out to her, and to you. she really is so blessed to have you to care for her
Most of us here are dealing more with Tourette Syndrome and Tic Disorder, and also have predominantly negative views on medications. But, as in the case of your beloved, there are more serious conditions that need more drastic intervention.
I am just wondering if you would get more experienced input over at BrainTalk Forums.
Many folks there who have vast experience with the pros and cons of various medications.
There are numerous forums, each devoted to specific issues so i am going to give you the main index and you can browse and see which category fits best.
these are the forums for specific neurological conditions
http://brain.hastypastry.net/forums/forumd...display.php?f=3
and these are the "general" forums
http://brain.hastypastry.net/forums/forumd...display.php?f=2
Please do stay in touch here too tho, as we care and will be keeping you in our prayers
my heart goes out to her, and to you. she really is so blessed to have you to care for her
Most of us here are dealing more with Tourette Syndrome and Tic Disorder, and also have predominantly negative views on medications. But, as in the case of your beloved, there are more serious conditions that need more drastic intervention.
I am just wondering if you would get more experienced input over at BrainTalk Forums.
Many folks there who have vast experience with the pros and cons of various medications.
There are numerous forums, each devoted to specific issues so i am going to give you the main index and you can browse and see which category fits best.
these are the forums for specific neurological conditions
http://brain.hastypastry.net/forums/forumd...display.php?f=3
and these are the "general" forums
http://brain.hastypastry.net/forums/forumd...display.php?f=2
Please do stay in touch here too tho, as we care and will be keeping you in our prayers
Thank you so much for your efforts to help. I don't know what to do or where to turn and you have been a great and wonderful source of information for me. Thanks again, and I will keep in touch.
Chemar is right, your fiance's situation is more complicated and more 'risky' than the one's that we face. The sites she recommended are a better resource.
I think it is reasonable to assume her recent lack of interest is associated with her current condition. Right now she needs a friend!
Your fiance definitely needs professional guidance in coming off or changing her medication, given her history. Good luck and God bless you both. I am sending prayers for you and her tonight.
Claire
I think it is reasonable to assume her recent lack of interest is associated with her current condition. Right now she needs a friend!
Your fiance definitely needs professional guidance in coming off or changing her medication, given her history. Good luck and God bless you both. I am sending prayers for you and her tonight.
Claire
You are all so kind thank you so much. That other forum looks so massive and I just don't know where to start ha. I'll figure it out though. Thanks again for all of your support and help.
Dear concerned,
I suggest you start with the threads for her known bi-polar condition. Here it is--it looks like a very active site.
http://brain.hastypastry.net/forums/forumd...isplay.php?f=96
Please keep in mind that not all sites focus on alternative (non-pharmaceutical) methods. And for bi-polar, I have no idea whether alternative methods even have a role.
But in general, this site and the Harvard site above (hastypasty) have extremely intelligent and well-researched posters who want to help others.
Claire
I suggest you start with the threads for her known bi-polar condition. Here it is--it looks like a very active site.
http://brain.hastypastry.net/forums/forumd...isplay.php?f=96
Please keep in mind that not all sites focus on alternative (non-pharmaceutical) methods. And for bi-polar, I have no idea whether alternative methods even have a role.
But in general, this site and the Harvard site above (hastypasty) have extremely intelligent and well-researched posters who want to help others.
Claire
concernedfiance
I am so glad you have started to post at BrainTalk too.
let me know if you need help navigating the many relevant forums there.
I know it can be daunting at times as it is so vast.
Also, do please check your private message box there (top right of screen) as there are some folks who will PM you too.
I am so glad you have started to post at BrainTalk too.
let me know if you need help navigating the many relevant forums there.
I know it can be daunting at times as it is so vast.
Also, do please check your private message box there (top right of screen) as there are some folks who will PM you too.
I'm usually over at the BrainTalk forum but see lots of familiar names over here!
My son has been on Seroquel for 1/2 yrs now and it seems to be helping with none of the side-effects you describe here. Of course, there could be some that we're not aware are side-effects! He takes quite a high dose, 900mg/day as our Dr. said that tests showed this drug needed a high dose. He's also a big guy at about 190 lbs.
My question here is has anyone mixed 5HTP or Tryptophan with Seroquel? We've tried many of the SSRI's for the moods and obsessions, but nothing is working and our new Naturopathic Dr. has suggested 5HTP.
Any ideas?
My son has been on Seroquel for 1/2 yrs now and it seems to be helping with none of the side-effects you describe here. Of course, there could be some that we're not aware are side-effects! He takes quite a high dose, 900mg/day as our Dr. said that tests showed this drug needed a high dose. He's also a big guy at about 190 lbs.
My question here is has anyone mixed 5HTP or Tryptophan with Seroquel? We've tried many of the SSRI's for the moods and obsessions, but nothing is working and our new Naturopathic Dr. has suggested 5HTP.
Any ideas?
HI My name is Sara I am 17 and about 2 months ago I was diagnosed (please excuse my spelling if its wrong) with severe depression, severe anxiety, and severe neurological disorders. I was put on seroquel 100mg along with 225mg's of effexor daily to basically knock me out at night. When I wake up in the morning i cant remember what I did the night before. Well I was just wondering if any one or knows of any one who was given effexor to put you to sleep. I'm not bipolar or schizophrenic. It was given to me to sleep. Please if any one knows any thing please e-mail me at lilmammasea420@yahoo.com Thank You!
Sara
Sara
This reply is for Sarah,
My doctor also gave me seroquel to sleep. I am not psychotic either and Im nervouse about being on it. I am taking half the dosage as my friend who is severely ill with schizophreneia. It works wonders for her.Of course that is what its for. He also gave me wellbutrin. Wellbutrin is making my ears ring and the seroquel makes me crazy. I cant remember anything. When i take it at night its like im heavily drugged and I cant see straight. Dizzy, spaced out feel like all around crap Horrible dreams..cant tell fantasy from reality. I dont want to discourage you but I feel like we are all just lab rats. seroquel is an a-typical antipsychotic which means they have been seeing results in patients that are not psychotic but at this point you can believe that its all an experiment.
be careful. Im going off this crap
My doctor also gave me seroquel to sleep. I am not psychotic either and Im nervouse about being on it. I am taking half the dosage as my friend who is severely ill with schizophreneia. It works wonders for her.Of course that is what its for. He also gave me wellbutrin. Wellbutrin is making my ears ring and the seroquel makes me crazy. I cant remember anything. When i take it at night its like im heavily drugged and I cant see straight. Dizzy, spaced out feel like all around crap Horrible dreams..cant tell fantasy from reality. I dont want to discourage you but I feel like we are all just lab rats. seroquel is an a-typical antipsychotic which means they have been seeing results in patients that are not psychotic but at this point you can believe that its all an experiment.
be careful. Im going off this crap
To all you Sero
quel users:
My daughter in law has been on this drug and is now in the hospital with seizures. They haven't stablized her blood pressure and have padded her bed rails as a precaustion of more seizures. She stumbles around like a very drunk person and remembers nothing the next day. She is only 20 yrs old. What happens to her when the sorry quacks get finished ruining her life?
Stop taking this trash. Save your life.
quel users:
My daughter in law has been on this drug and is now in the hospital with seizures. They haven't stablized her blood pressure and have padded her bed rails as a precaustion of more seizures. She stumbles around like a very drunk person and remembers nothing the next day. She is only 20 yrs old. What happens to her when the sorry quacks get finished ruining her life?
Stop taking this trash. Save your life.
Thanks Shirley. Soooo sorry for your daughter in law. This is important for folks to consider.
Did you see the thread at the top of this forum? It has doctors who use non-pharmaceutical approaches. If she is open to it, one of them might pull her out of this downward spiral that you imply she is on.
http://www.latitudes.org/forums/index.php?...p?showtopic=565
God bless.
Claire
Did you see the thread at the top of this forum? It has doctors who use non-pharmaceutical approaches. If she is open to it, one of them might pull her out of this downward spiral that you imply she is on.
http://www.latitudes.org/forums/index.php?...p?showtopic=565
God bless.
Claire
My son is 10 years old and diagnosed with ADD, OCD and TS in April. His tics were so bad he could not stay in a classroom. I was against a lot of medications because of the side effects like TD, I tried something new called Inversine and it seemed to work a little for 2 weeks and we also tried the clonodine, he only got worse. He has now been on Abilfy for 2 months and TIC FREE , WE also give him a multi vitiman, a liquid for ADD by Buried Treasure and omega 3 oils. I saw where other children were on as much as 10mg of the Abilify; however, my son responds to 2.5 mg a day - it does not have the side effects of the other anti pysk drugs. Trying to find the time to do it all naturally was not fast enough for our situation, had to get him accepted in school and able to do his work. Now, we are trying to elimate preseratives etc., what a job....little at a time to just figure out possibilities, great site here for information!!
QUOTE(ConcernedFiance @ Jun 12 2004, 09:22 PM) 
I'm not sure but she is Bipolar and she is apparently pyschotic. She was in a pyschiatric ward for about a year. I suppose this was the reason they are trying Seroquel on her? It's a pysch drug. Would it help to describe it? She tries to cut herself from time to time and she feels worthless, never really angry, she doesn't get rage she gets so emotionally upset and worthless feeling that she feels she should just die.
If she is diagnosed with tardive dyskinesia then as regards antipsychotics they would transfer her to Clozaril or it will advance. I have been documented as having made a full recovery on the novel antipsychotic agent in Phase II FDA study glycine, a glutamate antagonist, a new form of antipsychotic that will not cause tardive dyskinesia or diabetes. If she doesn't need an antipsychotic there's a wealth of options in the way of mood stabilizers. Lamictal is a good option. If she is diagnosed with tardive dyskinesia which I have in advanced form, I have found Zofran to be extremely helpful as well as the natural remedy rhodiola. All of these are from clinical studies and the research will be publicly available within a relatively short amount of time.
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